Gene mapping : using law and ethics as guides / edited by George J. Annas, Sherman Elias.
1992
RB155 .G3585 1992 (Map It)
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Details
Title
Gene mapping : using law and ethics as guides / edited by George J. Annas, Sherman Elias.
Published
New York : Oxford University Press, 1992.
Call Number
RB155 .G3585 1992
ISBN
0195073037 (alk. paper)
Description
xxii, 291 pages : illustrations ; 25 cm
System Control No.
(OCoLC)25050562
Bibliography, etc. Note
Includes bibliographical references and index
Record Appears in
Added Author
Table of Contents
Foreword / James D. Watson Eric T. Juengst
Contributors
Acronyms
I
The Human Genome Project
1The Major Social Policy Issues Raised by the Human Genome Project / George J. Annas Sherman Elias
3
2The Human Genome Project: Plans, Status, and Applications in Biology and Medicine / Victor A. McKusick
18
II
Social Policy Implications
3Those Who Forget Their History: Lessons from the Recent Past for the Human Genome Quest / Judith P. Swazey
45
4Genomics and Eugenics: How Fair Is the Comparison? / Robert N. Proctor
57
5The Past as Prologue: Race, Class, and Gene Discrimination / Patricia A. King
94
III
The Human Genome Project and the Human Condition
6Determinism and Reductionism: A Greater Threat Because of the Human Genome Project? / Evelyne Shuster
115
7If Gene Therapy Is the Cure, What Is the Disease? / Arthur L. Caplan
128
8Somatic and Germline Gene Therapy / Sherman Elias George J. Annas
142
IV
How Changes in Genetics Change Clinical Practice
9Privacy and Control of Genetic Information / Ruth Macklin
157
10Genetic Predisposition and the Human Genome Project: Case Illustrations of Clinical Problems
173
Part I / Ray White
Part II / C. Thomas Caskey
11Carrier Screening for Cystic Fibrosis: A Case Study in Setting Standards of Medical Practice / Sherman Elias George J. Annas Joe Leigh Simpson
186
12What We Still Don't Know about Genetic Screening and Counseling / James Sorenson
203
V
Legal and Ethical Frontiers
13The Potential Impact of the Human Genome Project on Procreative Liberty / John A. Robertson
215
14Patent Rights in the Human Genome Project / Rebecca S. Eisenberg
226
15Speaking Unsmooth Things about the Human Genome Project / Thomas H. Murray
246
16A National Advisory Committee on Genetic Testing and Screening / LeRoy Walters
255
VI
Conclusion
17Social Policy Research Priorities for the Human Genome Project / George J. Annas Sherman Elias
269
Glossary
276
Index
281