Society and genetic information : codes and laws in the genetic era / edited by Judit Sándor.
2003
QH438.7 .S26 2003 (Map It)
Available at Cellar
Formats
| Format | |
|---|---|
| BibTeX | |
| MARCXML | |
| TextMARC | |
| MARC | |
| DublinCore | |
| EndNote | |
| NLM | |
| RefWorks | |
| RIS |
Items
Details
Title
Society and genetic information : codes and laws in the genetic era / edited by Judit Sándor.
Published
Budapest, Hungary ; New York, NY : Central European University Press, 2003.
Call Number
QH438.7 .S26 2003
Edition
English edition.
ISBN
963924175X
Description
422 pages ; 24 cm.
System Control No.
(OCoLC)53369264
Note
Includes legislation.
Bibliography, etc. Note
Includes bibliographical references (pages 389-405) and index.
Series
Record Appears in
Added Author
Table of Contents
About the Authors
9
List of Tables and Figures
13
List of Abbreviations
14
Preface / Octavi Quintana-Trias
17
Introduction: Genetic Information: Science, Society, and Legal Norms / Judit Sandor
21
Genetic Revolution? Consequences for Science and Society / Pal Venetianer
57
What Can We Do with Our Genetic Knowledge? / Istvan Rasko
67
Religious Traditions and Stem Cell Research / Bela Somfai
81
Moral Dilemmas of Gene Transfer Techniques / Imre Szebik
95
Seeking Common Grounds on Genetic Issues: The UNESCO Declaration on the Human Genome / Roberto Andorno
105
Who Owns Genetic Information? / David Townend
125
The Genetic Testing of Children / Sheila McLean
145
A Disability Rights Approach to Genetic Discrimination / Gregor Wolbring
161
Insurance and Genetic Testing in Germany and the International Context / Jurgen Simon
187
The Constitutionality of the Icelandic Act on a Health Sector Database / Ragnar Aoalsteinsson
203
The Estonian Genome Project / Krista Kruuv Ants Nomper
213
The Latvian Genome Project / Valdis Pirags Elmars Grens
225
Population Genome Project in Latvia: Exploring the Articulation of Agency / Aivita Putnina
233
The UK Biobank / Alan Doyle Frances Rawle Peter Greenaway
247
App
Legal and Ethical Norms in the Field of Genetics. A Selection of International and National Legal Documents, Reports, and Policy Recommendations
267
App
Universal Declaration on the Human Genome and Human Rights (UNESCO, 1997)
283
App
International Declaration on Human Genetic Data (UNESCO, 2003)
291
App
Convention on Human Rights and Biomedicine (Council of Europe, 1997)
305
App
Additional Protocol on the Prohibition of Cloning Human Beings (Council of Europe, 1998)
319
App
European Biotechnological Directive (European Parliament and the Council of Europe, 1998)
323
App
Health Sector Database Act (Iceland, 1998)
339
App
Biobanks Act (Iceland, 2000)
349
App
Human Genes Research Act (Estonia, 2001)
357
App
Human Genome Research Act (Latvia, 2003)
375
Bibliography
389
Index
407