Stored tissue samples : ethical, legal, and public policy implications / edited by Robert F. Weir.
1998
RD127 .S76 1998 (Map It)
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Details
Title
Stored tissue samples : ethical, legal, and public policy implications / edited by Robert F. Weir.
Published
Iowa City : University of Iowa Press, [1998]
Copyright
©1998
Call Number
RD127 .S76 1998
ISBN
0877456348 (cloth : alk. paper)
0877456356 (pbk. : alk. paper)
0877456356 (pbk. : alk. paper)
Description
xiv, 374 pages : illustrations ; 25 cm
System Control No.
(OCoLC)38426040
Bibliography, etc. Note
Includes bibliographical references and index.
Record Appears in
Added Author
Table of Contents
Preface / Robert F. Weir
Pt. I
Stored Tissue Samples in Specific Clinical and Research Settings
A Pilot Test of DNA-based Analysis Using Anonymized Newborn Screening Cards in Iowa / M. Therese Lysaught Lisa Milhollin Ryan Peirce
3
An Ethical and Policy Framework for the Collection of Umbilical Cord Blood Stem Cells / Dorothy E. Vawter
32
Human Embryo Cryopreservation: Benefits and Adverse Consequences / Amy E. T. Sparks
66
Use of Stored Tissue Samples for Genetic Research in Epidemiologic Studies / Karen K. Steinberg Eric J. Sampson Geraldine M. McQuillan
82
Informed Consent, Stored Tissue Samples, and the Human Genome Diversity Project: Protecting the Rights of Research Participants / Henry T. Greely
89
Pt. II
Multidisciplinary Perspectives: History, Biomedical Research, Ethics, and Law
Beyond the Grave - The Use and Meaning of Human Body Parts: A Historical Introduction / Susan C. Lawrence
111
Negotiating Diverse Values in a Pluralist Society: Limiting Access to Genetic Information / Mary Ann G. Cutter
143
Researcher Obligations to Tissue and DNA Sample Sources / Curtis R. Naser
160
Human Biological Samples and the Laws of Property: The Trust as a Model for Biological Repositories / Karen Gottlieb
182
DNA Banking: An Empirical Study of a Proposed Consent Form / Jon F. Merz Pamela Sankar
198
Human Genetic Material: Commodity or Gift? / Bartha Maria Knoppers
226
Advance Directives for the Use of Stored Tissue Samples / Robert F. Weir
236
The Role of Community in Research with Stored Tissue Samples / William L. Freeman
267
Pt. III
Special Issues in the Use of Stored Tissue Samples in Forensic and Military Settings
The Use and Development of DNA Databanks in Law Enforcement / John W. Hicks
305
Storing Genes to Solve Crimes: Legal, Ethical, and Public Policy Considerations / Jean E. McEwen
311
DNA Banking in the Military: An Ethical Analysis / Kenneth Kipnis
329
Stored Biologic Specimens for Military Identification: The Department of Defense DNA Registry / Victor Walter Weedn
345
Contributors
Index