Law, palliative care and dying : legal and ethical challenges / John Lombard.
2018
KJC6229.E95 L66 2018 (Map It)
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Details
Title
Law, palliative care and dying : legal and ethical challenges / John Lombard.
Published
London : Routledge, 2018.
Call Number
KJC6229.E95 L66 2018
ISBN
9781138744646 (hbk)
1138744646
9781351716734 (web pdf)
1351716735
9781351716727 (epub)
1351716727
9781351716710 (mobipocket)
1351716719
9781315179568
1138744646
9781351716734 (web pdf)
1351716735
9781351716727 (epub)
1351716727
9781351716710 (mobipocket)
1351716719
9781315179568
Description
xvii, 262 pages ; 24 cm
System Control No.
(OCoLC)1009279784
Bibliography, etc. Note
Includes bibliographical references and index.
Available in Other Form
Electronic version: Lombard, John, (Law teacher). Law, palliative care and dying. New York, NY : Routledge, 2018 9781351716727 (OCoLC)1037292392
Record Appears in
Gift
Purchased from the income of the Silver Fund
Gift
The Arthur W. Diamond Law Library
Purchased from the income of the Silver Fund
Table of Contents
Acknowledgements
ix
Table of Legislation
x
Table of Cases
xv
Introduction: law, palliative care and dying: legal and ethical challenges
1
Introduction to central themes
3
Terminology
4
Palliative care
4
Specialist palliative care
6
End-of-life care
7
Euthanasia
7
Defining the research boundaries
9
Chapter structure
11
1.
development and practice of palliative care
15
1.0.
Introduction
15
1.1.
development of hospice and palliative care
16
1.1.1.
emergence of modern palliative care
19
1.1.2.
Expansion in categories of palliative care patients
23
1.2.
Palliative care providers
25
1.2.1.
Hospice care
25
1.2.2.
Hospitals
26
1.2.3.
community setting
28
1.3.
Palliative care practices
32
1.3.1.
Sedation in palliative care
33
1.3.2.
Artificial nutrition and hydration
44
1.4.
Conclusion
46
2.
Specialist palliative care and euthanasia: a legitimate distinction?
48
2.0.
Introduction
48
2.1.
Euthanasia: law and practice in the Netherlands
49
Denning `lasting and unbearable suffering'
51
2.2.
Murder: identifying the requisite intention
54
2.3.
legal and ethical justification of specialist palliative care practices
57
2.3.1.
doctrine of double effect
57
2.3.2.
Palliative sedation without artificial nutrition and hydration
70
2.4.
Conclusion
79
3.
human rights framework for palliative care
81
3.0.
Introduction
81
3.1.
Defining the concept of autonomy
82
3.1.1.
role of autonomy in advancing palliative care goals
83
3.1.2.
liberal conception of autonomy in palliative care
84
3.1.3.
Patient autonomy and the law
87
3.1.4.
refusal of medical treatment
89
3.1.5.
demand for medical treatment
91
3.1.6.
Capacity in Ireland and England and Wales
94
3.2.
concept of dignity in palliative care
98
3.2.1.
Inadequate palliative care provision as inhuman or degrading treatment?
101
3.2.2.
right to physical integrity - respect for private and family life
106
3.3.
right to palliative care?
109
3.3.1.
Advocating for a right to palliative care
110
3.3.2.
basis of a right to palliative care in international law
112
3.3.4.
basis of a right to palliative care in domestic law
115
3.4.
Conclusion
117
4.
legal framework for palliative care in the United Kingdom and Ireland
119
4.0.
Introduction
119
4.1.
legal framework in England and Wales for palliative care
120
4.1.1.
Shaping palliative care provision and development
120
4.1.2.
standard setting function of the General Medical Council
126
4.1.3.
demise of the Liverpool Care Pathway
128
4.1.4.
planning and commissioning of palliative care services
130
4.1.5.
contribution of the National Institute for Health and Care Excellence
131
4.1.6.
emerging legislative response to palliative care provision
133
4.2.
legal framework for palliative care in Ireland
138
4.2.1.
framework for palliative care development
139
4.2.2.
Irish Medical Council
140
4.2.3.
Nursing and Midwifery Board of Ireland
142
4.2.4.
Diverging standards and practice
145
4.2.5.
Irish Association of Palliative Care
146
4.3.
European Association of Palliative Care
149
4.3.1.
EAPC recommended framework for the use of sedation in palliative care
150
4.4.
Palliative care as a legal process
152
4.5.
Conclusion
153
5.
legal framework for palliative care in the Netherlands
154
5.0.
Introduction
154
5.1.
development of palliative care in the Netherlands
155
5.2.
Guidelines on specialist palliative care in the Netherlands
158
5.3.
KNMG Guideline for Palliative Sedation
160
5.3.1.
Defining the practice of palliative sedation
161
5.3.2.
Indications and preconditions for palliative sedation
161
5.3.3.
decision-making process for palliative sedation
165
5.3.4.
administration of fluids in palliative care
171
5.3.5.
administration of palliative sedation
173
5.3.6.
impact of the KNMG Guideline for Palliative Sedation
174
5.3.7.
Normal medical practice: a sufficient justification?
178
5.4.
Conclusion
180
6.
legal framework for palliative care in France
182
6.0.
Introduction
182
6.1.
End-of-life care: an evolving social and legal paradigm
183
6.1.1.
conflict of autonomy and medical paternalism
187
6.2.
legal framework for palliative care
188
6.3.
Law n° 99-477 of 9 June 1999
188
6.4.
Law n° 2002-303 of 4 March 2002
189
6.5.
Law n° 2005-370 of 22 April 2005
191
6.5.1.
withholding and withdrawal of medical treatment
192
6.5.2.
Recognition of patient autonomy
193
6.5.3.
Double effect reasoning
195
6.5.4.
Developing palliative care capacity
196
6.6.
Decision-making in practice: pre- and post-Leonetti
196
6.7.
Law n° 2016-87 of 2 February 2016
198
6.7.1.
Penser solidairement la fin de vie
199
6.7.2.
Substance of the Claeys-Leonetti Law
200
6.7.3.
Defining the practice of continuous deep sedation: a practice beyond palliative medicine?
202
6.7.4.
Indications and preconditions for continuous deep sedation
203
6.7.5.
decision-making process for continuous deep sedation
206
6.7.6.
administration of artificial nutrition and hydration
208
6.7.7.
administration of continuous deep sedation
209
6.7.8.
Converging practices at the end-of-life?
210
6.7.9.
impact of the Claeys-Leonetti law
212
6.8.
Conclusion
213
Conclusion: law, palliative care and dying
215
legitimacy of the distinction between specialist palliative care practices and euthanasia
215
human rights framework for palliative care
217
contemporary ars moriendi in law
219
Conclusion: the way forward
222
Bibliography
223
Index
254