New challenges for biobanks : ethics, law, and governance / Kris Dierickx, Pascal Borry (eds.).
2009
K3611.T7 N49 2009 (Map It)
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Details
Title
New challenges for biobanks : ethics, law, and governance / Kris Dierickx, Pascal Borry (eds.).
Published
Antwerp : Intersentia, [2009]
Distributed
Portland, OR : Distribution for the USA and Canada, International Specialized Book Services
Copyright
©2009
Call Number
K3611.T7 N49 2009
ISBN
9789050959742
9050959741
9050959741
Description
xx, 277 pages : illustrations ; 24 cm
System Control No.
(OCoLC)466359514
Note
Papers presented at a conference held in Leuven on May 18-20, 2009.
Bibliography, etc. Note
Includes bibliographical references.
Available in Other Form
Online version: New challenges for biobanks. Antwerp : Intersentia ; Portland, OR : Distribution for the USA and Canada, International Specialized Book Services, c2009 (OCoLC)754553848
Record Appears in
Added Author
Table of Contents
Ch. 1
Biobanks, networks and networks of networks / Darren Shickle Marcus Griffin
1
Ch. 2
Evolution in research biobanks and its legal consequences / Geraldine Fobelets Herman Nys
19
Ch. 3
Assessing values to set policies for consent, storage, and use of tissue and information in biobanks / Lori Andrews
31
Ch. 4
Between individualism and solidarity : biobanking in Sweden / Katharina Beier
49
Ch. 5
Culture, identity and genomic research / Kerry Bowman Maxwell J. Smith
65
Ch. 6
Children, biobanks and consent / Kristien Hens Kris Dierickx
77
Ch. 7
From medical biobanks to research tools : re-use of samples, governance and human rights / Emmanuelle Rial-Sebbag Anne-Marie Duguet Anne Cambon-Thomsen
87
Ch. 8
Protection of non-welfare interests in the research uses of archived biological samples / Tom Tomlinson
99
Ch. 9
Privacy, consent and governance / Lisa Austin Trudo Lemmens
111
Ch. 10
From private to public? : legal concepts of the right to privacy and ownership in the regulation of biobanks / Judit Sandor
123
Ch. 11
From idealism to realism : commercial ventures in publicly funded biobanks / Kristin Solum Steinsbekk Berge Solberg Bjorn Kare Myskja
137
Ch. 12
Private biobanks in Italy : an overview of the legal framework / Massimo D'Auria Alessandro Spina
153
Ch. 13
Genetic databases in the forensic context : a European perspective / Petra Bard
167
Ch. 14
Liberty and/or security : the main ethical question regarding forensic DNA databases / Annemie Patyn Kris Dierickx
181
Ch. 15
Forensic DNA analysis and biobanking in France / Anne-Marie Duguet Emmanuelle Rial-Sebbag Marie-Charlotte Lacore Anne Cambon-Thomsen
197
Ch. 16
DNA databases and biobanks : the Portuguese legal and ethical framework / Cintia Aguas Ana Sofia Carvalho Paula Martinho da Silva Jorge Soares
209
Ch. 17
Victorian cancer biobank : a consortium successfully united through sound planning, governance and management / M. Anne Thompson
225
Ch. 18
The UK Biobank Ethics and Governance Council : how valuable is an 'ethics+' approach to governance? / Graeme Laurie
239
Ch. 19
Orchestrating 'the end of the beginning' : a political science perspective on transnational biobank infrastructures in Europe / Georg Lauss
249