The governance of genetic information : who decides? / edited by Heather Widdows and Caroline Mullen.
2009
RB155.65 .G68 2009 (Map It)
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Details
Title
The governance of genetic information : who decides? / edited by Heather Widdows and Caroline Mullen.
Published
Cambridge, UK ; New York : Cambridge University Press, 2009.
Call Number
RB155.65 .G68 2009
ISBN
9780521509916 (hardback : alk. paper)
0521509912 (hardback : alk. paper)
0521509912 (hardback : alk. paper)
Description
xi, 235 pages ; 24 cm.
System Control No.
(OCoLC)318871873
Bibliography, etc. Note
Includes bibliographical references and index.
Record Appears in
Gift
Gift of the Julius Silver Program in Law, Science, and Technology.
Added Author
Gift
The Arthur W. Diamond Law Library
Gift of the Julius Silver Program in Law, Science, and Technology.
Table of Contents
Introduction / Heather Widdows Caroline Mullen
1
Sect. I
Problematising governance of genetic in formation
13
1
The medium and the message: tissue samples, genetic information and data protection legislation / Neil C. Manson
15
2
Me, myself, I - against narcissism in the governance of genetic information / Soren Holm
37
Sect. II
Ethical frameworks of governance
73
3
Decisions, consent and expectations of the individual / Caroline Mullen
51
4
Constructing communal models of governance: collectives of individuals or distinct ethical loci? / Heather Widdows
75
5
Rights, responsibility and stewardship: beyond consent / Roger Brownsword
99
6
Who decides what? Relational ethics, genetics and well-being / Sarah Wilson
126
Sect. III
Redesigning governance
149
7
Involving publics in biobank governance: moving beyond existing approaches / Kathryn G. Hunter Graeme T. Laurie
151
8
Genetic information and public opinion / Andrew Edgar
178
9
Harmonisation and standardisation in ethics and governance: conceptual and practical challenges / Ruth Chadwick Heather Strange
201
Bibliography
214
Index
229