Community, autonomy, and informed consent : revisting the philosophical foundation for informed consent in international research / by Pamela J. Lomelino.
2015
K3611.I5 L66 2015 (Map It)
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Details
Author
Title
Community, autonomy, and informed consent : revisting the philosophical foundation for informed consent in international research / by Pamela J. Lomelino.
Published
Newcastle upon Tyne : Cambridge Scholars Publishing, 2015.
Call Number
K3611.I5 L66 2015
ISBN
144387115X (cloth)
9781443871150 (cloth)
9781443871150 (cloth)
Description
xii, 172 pages ; 22 cm
System Control No.
(OCoLC)903891929
Bibliography, etc. Note
Includes bibliographical references and index.
Record Appears in
Table of Contents
Acknowledgements
viii
Foreword
x
ch. One
Introduction
1
Internalized Oppression and Adaptive Preferences
Internalized Oppression and Privileged Groups
Oppressed Groups and Vulnerable Populations
Internal Constraints and Ethical Guidelines
Community
Autonomy and Informed Consent
Chapter Summaries
ch. Two
Autonomy and the Traditional Account
14
Distinctions
General Definition of Autonomy
Purpose of a Theory of Autonomy
Level of Specificity Required in Autonomy Theories
Categorizing Theories into General Accounts
Atomistic Individual
Liberal and Political Theory and the Atomistic Individual
Traditional Account of Personal Autonomy
Conclusion
ch. Three
Embedded and Relational Autonomy Accounts
31
Clarifications
Embedded Account of Autonomy
Further Reason to Reject the Embedded Account
Relational Account of Autonomy
Feminist Objections to the Traditional Account of Autonomy
Applying the Relational Account of Autonomy to a Particular Case
ch. Four
Traditional Autonomy Theorists Respond
51
Chapter Overview
Social Structures
Examining Contemporary Autonomy Theories
ch. Five
Relational Autonomy in the Context of International Research on Human Subjects
66
Cross-cultural Applicability
ch. Six
Ethical Conditions for Respecting Autonomy
78
Requiring Critical Reflection
Previously Proposed Ethical Conditions
Problems with Relying on Just One Proposed Condition
Arriving at a Set of Minimally Sufficient Ethical Conditions
ch. Seven
Informed Consent and Autonomy
97
Informed Consent
Emergence of Informed Consent in Research
Autonomy as the Philosophical Foundation for Informed Consent
Guidelines
Objections to Autonomy as the Justification for Informed Consent
ch. Eight
Addressing Alternative Solutions
112
Consent-as-Waiver
Problems with Consent-as-Waiver
How Consent-as-Relational-Autonomy Overcomes These Problems
Consent-as-Authority-and-Trust
Problems with Consent-as-Authority-and-Trust
ch. Nine
Current Informed Consent Guidelines
125
Declaration of Helsinki
Belmont Report
CIOMS Ethical Guidelines
Code of Federal Regulations
UNESCO Declaration
Summary of Current Guidelines
ch. Ten
Revisions to Informed Consent Guidelines
143
Providing Support Mechanisms
Fostering Participation
External Monitoring of the Research Process
Bibliography
156
Index
169